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Autism, Family

On Being an Autism Dad

July 20, 2016 • By

Recently, it was my son’s 18th birthday. It really doesn’t seem real that I now have two adult children. Both of my adult children are on the autism spectrum, which poses certain challenges when it comes to leading them to a life of independence. Let’s just say, it’ll be a while before I get to turn one of their bedrooms into a man-cave. To be honest with you, they’re both great guys and I really don’t mind having them around a few extra years.

My middle son (the one in the picture) is the one who just turned 18. I vividly remember gazing at him, when he was born, and imagining all of the wonderful things he would do when he grew up. I still believe he is going to do wonderful things, it’s just that the road to Wonderfulthingsville is going to be more like a winding, speedbump-laden path than a straight-shot expressway.

Now that the boys are both considered adults, I figured I’d share a few things about what it’s like to raise autistic children. With an estimated 1 in 10 children on the spectrum, chances are you have a child, or know a child, with autism. If you have a child with autism, I hope these help.

You wish you could do more to help them make friends.
This has been one of the toughest things for me. My heart breaks on a regular basis when I see my son ignored or rejected by other kids. Autism isn’t a visible, easily recognizable disability so other teenagers just tend to see him as weird or quirky. When they exclude him, he notices and it hurts. At youth group, he usually sat alone and came home feeling sad.

It’s hard for him to make friends online as well. Having a very black and white outlook on life, he’ll usually “call out” people for swearing or inappropriate behavior. As you can imagine, this opens the door for all sorts of negative reactions from people who don’t understand the real person behind the avatar.

Since it’s so difficult for my son to make friends, I try my best to be a good friend to him. I check in on him often, invite him to walk with me, and play games with him. He really is a treasure and I pray often for him to make good friends.

You have to learn a new language.
Imagine living with someone who only speaks Italian. You work hard at learning to speak Italian yourself, but then you realize that the person SPEAKS Italian, but UNDERSTANDS French. Then you have to learn French, but don’t get too comfortable because you might need to brush up on your German once in a while.

The point is, communication isn’t always easy between myself and my son. I’ve learned to ask a lot of clarifying questions before responding to what he says to me. I’ve also learned that I can’t always count on his tone of voice or body language to make things clearer. Unless he’s angry. Then it’s pretty clear.

I have to be patient, listen actively, and talk in ways that do not communicate too many ideas at a time.

Your hopes and aspirations for them have to remain fluid.
We all have hopes and aspirations for our children. We dream of them becoming successful writers, pastors, entrepreneurs, doctors, and missionaries. Sometimes our children don’t want to do the things we dream for them, and sometimes they just don’t have the capacity.

When I heard about Temple Grandin and John Elder Robison, I thought, he could do something amazing! He might. Or he might not. Either way, I’m ok with it. He IS someone amazing and I love him no matter what.

Earlier today, I took him down to the local community college to get enrolled. He wants to be a medical transcriptionist. He has mad typing skills and I’m super proud of him.

You have to take initiative for them.
My son likes to be alone in his room…a lot. He likes things with screens. He likes the computer, the phone, and the television. When company comes over, he goes to his room. It’s not that he doesn’t like company, or exercise, or creativity. He just needs someone to take him by the hand and draw him out.

For many autistic kids, hypersensitivity to the world around them is a problem and there’s comfort in being alone and focusing on a screen to tune everything else out. If he hasn’t gotten exercise in a while, I’ll invite him on a walk. If there’s a fun activity he might like, I have to encourage him to get involved. Sometimes he protests to playing a game or hanging out with the family, but he’s almost always glad that he did.

You have to remember that they are fearfully and wonderfully made.
I used to pray a lot that God would heal my son. I know now that he is just as God wanted him. As Temple Grandin says, “Different, not less.” A disability is a bend in the road, not the end of the road. My son has taught me so much about childlike faith, friendship, and love. Being his father has made me a better person; more caring, patient, and kind.

I wouldn’t trade the 18 years I’ve spent with him for anything. I see Jesus in him. I love the way he worships (he plays bass on the church worship team), I love the way he jokes with me (he has incredibly well-timed farts), and I love his smile. He really is fearfully and wonderfully made.

If you have a child with autism, I hope you don’t grow weary. Keep dreaming for him or her, and be an amazing friend.


Family, Fathers

The Power of Fathers

May 6, 2016 • By

You’ve probably heard before that this is a fatherless generation. 20 million children live in homes without fathers.

This is a reality that is leaving a gaping wound on our society.

Every summer, our church sponsors a camp for abused and neglected foster children called Royal Family Kids Camp. We work with social services to bring 25-30 kids (age 6 to 11) to a camp in western Illinois where they get to be kids without the fear of abuse or rejection. Some of them have been beaten, some of them have been molested, and some both. Of all of the campers that I’ve met since we started the program, I have yet to meet one with a biological father in their lives. It usually leaves me with thoughts of breaking dads’ kneecaps.

As a person who grew up without a father in the home, I know what it’s like to try to become a real man without a dad to show you how. The feelings of vulnerability and insecurity were sometimes crippling. When a friend’s dad attempted to molest me, I wished more than anything for a father’s arms to run to but they weren’t there. When I was bullied, I didn’t have a dad to tell me how to handle it. When the guys all talked about sports or cars, I was clueless. It was by God’s grace that things weren’t worse and I remember that every time camp rolls around.

I recently came across some startling statistics about growing up fatherless:

Children from fatherless homes account for 63 percent of youth suicides, 71 percent of the pregnant teenagers, 90 percent of the homeless and runaway children, and 70 percent of the institutionalized juveniles. They account for 85 percent of the children with behavioral disorders, 80 percent of rapists, 71 percent of all high school dropouts, 75 percent of all adolescent patients in chemical abuse centers and 85 percent of all youths in prison.

Wow, if those numbers don’t move you, then check your pulse. Fatherlessness is a pandemic with far-reaching effects.

So, what can be done? Well, I don’t think the answer is to fold our arms and expect dads to step up to the plate. Truth be told, most absentee and deadbeat fathers will always be just that. I’m not trying to be cynical, it’s just the hard truth. I believe that the Lord can change hearts and I believe that some men will come to their senses, but most will continue in their cycles of neglect and substance abuse.

No, what fatherless children need is a miracle in the form of you and of me. They need someone who will play with them, talk to them eye to eye, and be safe and consistent. You don’t have to join the foster system (though that would be amazing) or rearrange your life. You just have to learn to keep your eyes open and let them into your life.

I was blessed to have a couple of men in my life that accepted me as I was, affirmed me, corrected me, and didn’t abandon me when I was being a tool. I believe it’s one of the reasons that I’ve been married for 24 years and my kids still like me (most days).

My prayer for us today is that we pause when we see the lonely, the abandoned, the fatherless. That we won’t be too quick to be about our business, and that we’ll walk with them long enough for them to see what a good man looks like and lives like.

Let’s be the miracle they need.